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Living With Atopic Dermatitis in High School: A Family Reflects on an Eventful Senior Year

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F or Kristina DiCarlo, senior year of high school was punctuated by all the typical “lasts” before graduation — in particular, her final dance performance and, soon after, the penultimate gathering of classmates: prom.

Her parents, Tom and Donna DiCarlo, wanted to do all they could to make sure these experiences were magical for their daughter. The challenge: Kristina, who lives with atopic dermatitis, a type of eczema, was plagued with flares, primarily on her feet and ankles.

“ I grew up with eczema,” Tom says, reflecting on the empathy he had for his daughter’s experience. As he recalls, the condition was often mistaken for something else, such as athlete’s foot or poor hygiene. Tom’s original diagnosis was ringworm, and the treatment he was given just made his skin worse. “It took a long time for the doctors to finally say, ‘Oh, you have this skin problem,’” he says.

Tom remembers his experience growing up with eczema.

“When I look back on my own experience with it and then I look at [Kristina’s] experience with it, I think it affected her more than it did me. … I had the physical problems, but I didn’t have the social stigma attached to it.”

Sharing the experience of a childhood with atopic dermatitis strengthened an already tight bond between Tom and Kristina that still thrives today. Although the condition wasn’t as well understood when Tom was growing up, and the treatments weren’t as advanced, he had strategies to manage it and was able to pass those on to his daughter.

As a teen, Tom figured out that stress was a key trigger for him. “If there’s any time that’s stressful in life, it’s probably being a teenager,” he says. “I think those stress triggers actually exacerbated [Kristina’s] condition.” Tom encouraged her to find ways to stay calm and, if possible, let things “roll off [her] back.”

Today, Kristina often draws on her dad’s wisdom. She’s recognized “that ability to use your body to tell you what’s going on internally. … It’s a helpful road map that I have on my body.”

K ristina was diagnosed with atopic dermatitis when she was around 9. The condition became especially problematic as she got serious about dancing. “She would be wearing [dance] shoes all the time and then [be in] bare feet,” Donna recalls. “So I think it started to progress the more into dance that she was.”

Kristina remembers having flares pretty consistently all during high school. Although her hands and the skin behind her knees were sometimes affected, her feet took the brunt of her breakouts, which were “big, circular, red, itchy patches all over my feet, in between my toes, on my ankles.”

Young woman sitting on a sofa.
Kristina recounts a scary flare-turned-infection.Megan Maloy
One of Kristina’s worst atopic dermatitis flares erupted just in time for her senior dance recital, when she had “this crazy breakout on the bottom of my foot.” The flare was terrible. “All of the skin was gone. It was just completely raw. I couldn’t really walk on it,” she says. “I wasn’t supposed to dance, but I refused not to dance. I would wear a medical shoe and dance in it, which is just crazy.”

In time, though, the flare “got really bad, to the point where I started to get blood poisoning lines … coming off my leg, and I had to be taken right to the podiatrist.” Donna got her to the doctor just in time. They told Kristina that if the blood poisoning had crept even a little bit higher up her leg, she would have had to head to the emergency room.

T om and Donna adopted a divide-and-conquer approach to shepherding Kristina through flare-ups during her senior year. Donna largely focused on getting Kristina to doctor’s appointments and, beyond that, problem-solving. “Moms are creative. They can fix anything,” Kristina says.

Tom describes one of his primary roles as “the eczema policeman.” Well aware of how important it is to be consistent with treatment (and how forgetful or downright stubborn teenagers can be), he became the parent who was always saying to Kristina, “Put the cream on. Did you put the cream on? Put the white socks on, put this on, put that on. Do this, do that,” he says. “You have to stay on top of eczema. I was making sure that I was enforcing the regimen.”

Skin-soothing creams and medications for atopic dermatitis.
Kristina has a collection of skin-soothing creams and medications for atopic dermatitis.Megan Maloy

From the start, treating Kristina’s atopic dermatitis was an exercise in trial and error. When patches started to pop up between her toes and on the backs of her knees and hands — around age 7 or 8 — Tom had a good idea of what was happening, thanks to his own experience. He and Donna first turned to over-the-counter products to help manage their daughter’s outbreaks.

But when a flare on the bottom of Kristina’s foot got infected, they took her to a specialist for the first time. The doctor confirmed she had atopic dermatitis and prescribed stronger medications than Kristina had been using.

After that, it took a long time to find products that helped her skin. Kristina remembers “trying everything” to clear up flares. The process was often frustrating: It could take weeks of using one product to discover it simply wasn’t going to do the trick. Donna says the cost of many medications exacerbated the frustration. It was hard, she said, for Kristina to know, “She could treat it … but it’s unaffordable. There’s more stress and anxiety building up over, you know, you can treat it, but why is it almost $200 to do that?”

I n the weeks leading up to prom, Kristina was as organized as a bride-to-be. In fact, Donna took her to a bridal shop to look for a dress, where her daughter found one she loved. It was perfect, except for the color, so the salesperson showed them another color online — a “white-and-gold version,” says Kristina. “And I just loved it. I was like, ‘This is it.’ And it fit and didn’t even need to be altered.”

To complete the outfit, Kristina found sparkly metallic sandals with heels to match the top of the dress. “Prom was the big event of the year,” Donna recalls. “She had the date she wanted to have, the dress she wanted to have, the shoes that she wanted to have.”

A week before the big day, a flare “turned [Kristina’s] beautiful little toes into these unfortunate-looking sausages,” says Donna. “Everybody’s going for pedicures. … She didn’t want to do that. So she skipped some of those moments.” Determined not to let atopic dermatitis ruin prom night for her daughter, Donna made an appointment with the podiatrist, who treated Kristina’s foot for an infection. As a result, not only did Kristina have visible eczema patches on her feet and ankles, but she was also sporting a bulky bandage on one foot.

Mother and daughter knew they’d have to be smart about managing the flare for prom. It was a matter of balancing “wanting to look good and … feel beautiful at prom with managing the painful patches without making them worse,” Kristina says. “You can’t jeopardize your eczema and the pain and what your skin is telling you for … the sake of wearing something pretty.”

The solution was a combination of skin-colored bandages attached to the inside surfaces of the sandals — so the shoes wouldn’t scratch Kristina’s tender feet — and the strategic application of stage makeup, which Kristina had tons of, thanks to her years of musical performances in high school.

Donna remembers sending Kristina off to the prom with some simple advice. “I told Kristina, ‘Just go and have a great time. Go have fun. We did everything we can. Don’t think about your feet. No one else is going to look at them or notice them, except they’ll see your shoes. … Just have a great time with your friends.’”

The advice worked. For Kristina, “Prom was great. It was super fun,” she recalls. “And I didn’t think about having eczema once all night. I just existed, and it went out of my mind the second I got there.”

Young woman practicing yoga.
Kristina stays in touch with her body as part of her atopic dermatitis self-care.Megan Maloy
T hough her high school days are behind her, much of what Kristina learned as a result of her parents’ love and support during the eventful end of her senior year has stayed with her. Thanks to self-care strategies — staying hydrated, getting plenty of sleep, keeping active through dance and yoga — Kristina has better control of atopic dermatitis now than she did then. Flares are rare, but when they do happen, she’s able to draw from the lessons her parents taught her about acknowledging the flare but not allowing it to bring her down.

In particular, Kristina appreciates the loving way her mom was able to respect the angst she felt when flares threatened to undermine important events. “She never made it smaller,” Kristina says. “It was like, ‘Your feelings are big toward this, so we’re going to acknowledge those feelings and how much weight it has on you, and we’ll solve it together.’ And I just think that is really important.”

Tom and Donna could not be prouder of Kristina, who’s now 26 and living on her own, working as a professional performer and art teacher. They still hang out when Kristina can break free from her busy life. And while atopic dermatitis is hardly the demon it once was in their family dynamics, the close bond the experience created while Kristina was growing up holds strong.

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